Monday I had my liver panel again. The reduction by half in my enzyme levels (AST/ALT) surprised and delighted me. My bilirubin was up a bit.
Today I saw my Knoxville oncologist. He said he would wait on giving me Remicade and see what my liver numbers look like next Thursday. He also said he’s now doubting my liver issues are from the Keytruda. He instead suspects my trial drug is the culprit. My pre-trial scan showed “intense” radiotracer uptake in my liver (e.g., lots of cancer), so the trial drug would have hit my liver hard. And the fact that my enzymes appear to have peaked and are now declining makes him doubt lingering Keytruda as the cause. So he will have an interesting conversation with my clinical trial doctor in the next week. We’ll see if anyone accepts the blame. I’m guessing not. [Update later in the day: The two oncologists do agree on the plan of waiting to see if the liver gets better on its own.]
Meanwhile, I have good days and bad days, depending on how my GI tract and fatigue are doing. But my “bad” days aren’t all that bad. Time to take a break from thinking about cancer so much and work on other projects.
Liz accompanied me to my appointment today but was disappointed that there were no orange Tootsie Pops at the checkout desk. She had to settle for red. Sometimes it’s the little things that carry us through.