My liver numbers are moderately worse. The two big steroid infusions Thursday and Friday didn’t solve the problem yet. But the nurses today were more concerned at the virtual disappearance of my white blood cells. Continue reading “Missing: all my white blood cells”
This was the big week: son Brian and I were all set to fly to NY Tuesday and spend two nights and three days there. Brian loves photography and food–he was excited. But then my GI tract went rogue.
In today’s blood tests, my liver enzymes rose again (not good), but not back up to where they were two weeks ago–much smaller increase (good-ish). So the bounce was more like a Silly Putty bounce than a Superball bounce (for those of you old enough to have played with these as a child).
Bilirubin is still climbing. The corners of my eyes are yellow. Fatigue recently has been overwhelming.
Will get another blood test next Wednesday. No proposed action on anything yet from the oncologists. I should be able to get the result from today’s PSA test tomorrow. That may be my first hint of whether the clinical trial drug is working.
Funny story. Tuesday morning I rushed to get out the door to my 9:45 AM radiation oncologist appointment. I don’t like to rush, but I had to gather up scan image discs and radiology reports, in case those hadn’t been forwarded as they should have been. And usually they haven’t been. Once again I’m having to orchestrate my overall, cross-specialty care and communication, something I’m neither trained in nor much good at anymore.
But that wasn’t the funny part. The funny part was after I parked, went in, and announced myself at the Special Window for Self Announcing. The nice lady looked at me, perplexed. Continue reading “How to move to New York without knowing it”
Monday I had my liver panel again. The reduction by half in my enzyme levels (AST/ALT) surprised and delighted me. My bilirubin was up a bit. Continue reading “Liver improves on its own”
For the past week, I’ve felt extra fatigued. This morning, at my appointment in NYC, my liver panel showed very high liver enzymes, just a week after they were nearly normal. So they ordered me an ultrasound of the liver. But this afternoon’s ultrasound didn’t turn up any explanation. It seems their best guess at this point is a delayed gift from Keytruda. So I’m at LaGuardia, waiting to fly home. It has been a difficult trip because of the fatigue, GI issues, and the stress of yet another complication. At least I don’t have to come back for four weeks.
They want me to get my levels re-tested Monday in Knoxville and to go see a liver specialist. I don’t even like liver.
Well-intentioned people thoughtfully remind me I don’t know when my life will end or even if I will die of cancer. The Hypothetical Bus of Death, which runs over so many (hypothetically), could end my life tomorrow morning, instantly removing all my uncertainties and anxieties, replacing them with certitude and serenity. Continue reading “Hypothetical bus of death”