Warrior language

I’ve written before about the metaphors we use to describe our relationship to cancer. This recent LA Times op-ed also makes a good argument for questioning the way we talk about having cancer and why.

When she became dizzy and passed out in the hospital, she’d wanted to ask her oncologist if she was dying, but she couldn’t bring herself to project anything other than a positive outlook. “I’m not a quitter,” she told me, “but I think fighting this is killing me.”

Read the full article:

The good that can come when we stop seeing cancer as a battle to win or lose, by Sunita Puri

Spoon Theory

This video is a vivid explanation of living with Lupus. But it applies also to people with incurable cancer, chronic fatigue, fibromyalgia, or other debilitating illnesses. Thanks to my friend Knitting Beth for bringing this to my attention. It’s worth the 13-1/2 minutes. Watch it!

Survivor? Warrior? What am I?

no-survivors
Andre the Giant in the movie, “The Princess Bride”

My sister-in-law Teresa recently brought this article, “I Have Cancer. Please Don’t Call Me a ‘Survivor’” by Howard Wolinsky to my attention (the article may require setting up a free login to read). It captures my reluctance to be called a cancer “survivor” or “warrior.” Some people adopt one or both of these labels readily–that’s fine with me. But I won’t wear either on a t-shirt. Continue reading “Survivor? Warrior? What am I?”

Post-infusion consolation

Confusing oncology appointment today. I was all prepared with my clinical trial printouts and questions, but I was only scheduled for labs, Keytruda and a B12 shot. No doctor consultation. Maybe he wants to wait until after tomorrow’s clinical trials visit in Nashville?

I was obedient, but I left my sheaf of papers for the nurse to give to him, and I asked for a referral up in NYC as well.

Then I went to Beaver’s Dough-Joe, a recent gift to Knoxville of excellent doughnuts. I stuck with just a half dozen this time. Mmmmmm.

In support group we often talk about the need to schedule something fun right after a big appointment, a scan or, in this case, the big appointment that wasn’t. Having fun on the schedule makes the day consist of more than anxiety.